Friday, September 12, 2008


The month of September is many things for us. One, it's our anniversary month. We've been married 3 years. Two, it's my birthday month. I turn 30 tomorrow! This is a hard birthday for me to wrap my head around.

In September we also remember 9/11. May we never forget...

September is also the month of awareness for two causes very close to my heart:

National Craniofacial Acceptance Month
Ever since Jackson was diagnosed with a bilateral cleft lip and palate, my eyes have been opened to children with facial differences. Something has changed in me. And has allowed these faces to open my heart still wider.

National Childhood Cancer Awareness Month
As many of you know, my family lost my brother Gabriel to Leukemia in 1990. He was 6 years old. This year, founded by a mom inspired by her son's fight against cancer, cookies for kids' cancer was launched.

"May God break my heart so completely that the whole world falls in."


Emery Jo said...

First, Happy birthday!!!

Second, Thank you for letting us know about these causes. Very powerful stuff.

Third, where is that quote from? Because I pretty much started bawling when I read it. SO beautiful!!!


Thanks for the birthday wishes Emery! Can't believe I'll be 30.

The quote is from Mother Teresa. Truly beautiful.

Anonymous said...

Happy Birthday Halle!

the itzens

Anonymous said...

Hi! We also have a son, who´s diagnosed with SGBS. We live in Finland, which is a small country in the northern Europe.
It´s been interesting to read about Jackson´s journey, because we´ve pretty much gone trough the same with our son Ossi, now 2 years old.
If you like to contact me, here´s my email address:
Laura Siiki

Lisa said...

Hi there,
My name is Lisa Williams, and I'm a producer for a new daytime talk show called THE DOCTORS. I'd like to get in touch with you about the possibility of sharing Jackson's story on the show to help raise awareness about Simpson Golabi Behmel Syndrome. Let me know if you're interested. You can email me directly at
All my best,
Lisa W.

Rhonda said...

Our 7 month old son, Trevor, was just diagnosed with SGB two weeks ago. I was really glad to find your blog—your love for your son is so evident. We live in Northern California—I’d love to exchange stories if you’d be interested. My email address is rhonda.king at