Saturday, April 26, 2008

Not Long Now...


Thursday marked Jackson's final NAM appointment. Instead of taking the train down, my mom and I ended up driving, primarily due to the fact that Jackson had 3 appointments to make, the first one at 10am.

At 10am we met with his otolaryngologist (ENT - ear, nose & throat) to discuss the placement of tubes in his ears at the same time as his lip and nose surgery. This is common practice so that they only have to administer anesthesia once. Babies with clefts have an increased risk for ear infections and the tubes lessen the risk of hearing loss.

Directly following his ENT appointment, Jackson had a physical done with a doctor from the plastic surgery team that will be performing his surgery. Typically lip & nose repair surgery is considered outpatient surgery, allowing the baby to go home the same day. It turns out, however, that since Jackson was a preemie, the anesthesiologists would like to keep him overnight for observation.

Our final appointment was at 1pm - his final NAM appointment. It is crazy to think we are almost done with the NAM process. The results have been phenomenal! Jackson started out with little to no columella (the horizontal column at the base of the nose separating the nostrils). This is common in cleft patients and can cause the nose to appear 'smashed' after the repair. The nasal stint part of the NAM process helps to stretch the columella thus allowing for a much more normal looking nose repair. Having said that, Jackson now has 5 mm of columella (6-7 mm is normal length)! Not only that, his gum line is gap-free! We are so thankful for those of you who contributed to the NAM process for Jackson - at his appointment Thursday the NAM was "PAID IN FULL". We couldn't have done this without your support.





So now we eagerly await May 1st. We will head down south after Daniel gets off work on Wednesday, check into our hotel two blocks from the hospital, and wait for the phone call that tells us what time to arrive at the hospital the next morning for his surgery. The surgery, including tube placement, is calculated to take about 4 hours, then Jackson will go into recovery. We will be waiting with him in recovery until he wakes up. He will most likely stay Thursday night in the hospital for observation and we will head home on Friday.

It's crazy to think we will never see his face again as it is now. It's the face and wide smile we've grown to know and love. But we are also excited for this next, very necessary step. Please keep us in your prayers, praying that Jackson stays healthy this week (surgery will be postponed if he gets sick), that surgery will be smooth and Jackson's recovery will be quick. We will update again following his surgery.

4 comments:

Robertson Family said...

Thanks for updating...you are in our prayers daily! How awesome that the NAM is paid in full! You guys are on our hearts constantly! We love you.

pollard family said...

hi you guys~ we just recently found out that you had a blog dedicated to your little guy. it's been neat for us to catch up on what's been going on in your changed lives and to know how to specifically pray for you. daniel- i remember when we were eating dinner at phil's 30th birthday talking about baby boy names (when i was pregnant with max) and you said you liked the name jackson. how awesome that you are a dad now...to jackson. he is precious. it's been so long since we've hung out, but we think about you often. we are praying for you guys. much love to you three,
the pollards

Emery Jo said...

We are praying.

Sometimes that feels so cliché to say, and yet... I hear it's very powerful stuff.

Go Jackson, GO! We're rooting for you all from Oklahoma City!

Soderin Family said...

It was so good seeing you guys this weekend. It was great to finally meet Jackson. He is just precious. You and Daniel are amazing parents and I am humbled by the sacrafices you both are making so Jackson can receive the best care. We will be praying for all three of you this week and on the day of the surgery.
Just like Daniel said, we have the Shell Beach bond now. We are here for you guys if you need anything, and we would to see more of yuo guys now that you are out in our neck of the woods or shall I say our pile of the sand.

Hugs,

the soderins